Heartbroken mum is BULLIED by strangers who call her baby girl a monster

How cruel

January 08 2019

The mum of a baby with serious disabilities has begged cruel strangers to STOP shaming her and her daughter.

Racheli Goldman, is mum to little Batya, who was born with a spinal cord hernia and two rare syndromes: Pfeiffer’s syndrome and Antley-Bixler’s syndrome.

Half-way through the pregnancy, doctors weren’t sure Batya would survive the birth and advised her parents to abort, but they refused and their little girl is now one.

But her distinct appearance has led to bullying, trolling and hateful comments when her parents take her out in public. 

“They have said that we should have killed her,” says dad Naffi Goldman,to the Daily Mail.

 

To our darling daughter Batya Hannah, Today you are 1 year old... Happy Birthday and Mazal Tov from all our heart. We hoped and prayed that we would get to this milestone; despite the prognosis that the doctors gave you.... You have made it this far... and we are so happy. We see you as a gift from God to us and to all the world. You have taught and reinforced for us so many things; patience, love, belief, joy, hope and trust in Hashem to name but a few. We love you, and we are grateful to God for having entrusted you to our safekeeping. All our love, May we have many more beautiful years together as a family, Mummy and Daddy xxx @helpbatya #love #happybirthday #family #helpbatya #gofundme #help
To our darling daughter Batya Hannah, Today you are 1 year old... Happy Birthday and Mazal Tov from all our heart. We hoped and prayed that we would get to this milestone; despite the prognosis that the doctors gave you.... You have made it this far... and we are so happy. We see you as a gift from God to us and to all the world. You have taught and reinforced for us so many things; patience, love, belief, joy, hope and trust in Hashem to name but a few. We love you, and we are grateful to God for having entrusted you to our safekeeping. All our love, May we have many more beautiful years together as a family, Mummy and Daddy xxx @helpbatya #love #happybirthday #family #helpbatya #gofundme #help

 

But the family are so proud of little Batya, they want people to understand just how cruel the staring and pointing is when they are out in public.

When Batya was born, doctors in Manchester, UK told her parents to prepare for the worst. "She had an enlarged head and her eyes were bulging. I could see straight away that her spine wasn’t straight. She was frightening to look at,” Naffi said.

“It was scary for us. We knew straight away that the future was going to be very, very hard for us.”

But they had no idea just how hard their first year with Batya would be. Mum Racheli found that out when she shared pictures of her daughter on Facebook, she  became the subject of verbal abuse. 

One comment on Racheli’s photo of her baby read: “Do you think keeping this creature alive is the right thing to do?”

Both Naffi and Racheli have been left dumbstruck by the harshness of the opposition they’ve faced but they can’t fathom why there’s so much hatred.

“People said ‘why bring a creature into this world, you should have killed her’. It broke our hearts,” Naffi explained.

 

Instagram

Instagram

 

Both Naffi and Racheli have had to give up their jobs to care for their daughter. She requires 80 procedures a day to keep her alive - including round-the-clock medication and feeding via a tube - and they have even made a video to help people understand just how sick she is. 

Around 80 per cent of children worn with Batya's disabilities die within 12 weeks but she has ‘found a way to survive’.

 

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